Participants with a neurodegenerative condition in the NDIS

The Participants with a neurodegenerative condition in the NDIS report is part of a series of publicly shared reports released by the NDIA as part of the Agency’s commitment to sharing data. 

This is in addition to the comprehensive quarterly and other reports regularly released to assist stakeholders better understand participant characteristics, participant outcomes and market trends.

As of 31 March 2021, there were 14,389 participants with a primary neurodegenerative condition in the NDIS, making up 3.2% of all Scheme participants with an approved plan.

The report summarises available information on:

  • Participants – participant profile across various participant characteristics including age, gender and Indigenous status, as well as participation rates for participants with a neurodegenerative condition.
  • Participant experience – measures of the Scheme as experienced by the participants, including eligibility rates, Participant Service Guarantee (PSG) metrics, as well as rates of exits and complaints for participants with a neurodegenerative condition. Specific attention was paid to plan durations, the use of assistive technology and support coordination.
  • Committed supports and payments – the amount, distribution and types of supports committed in plans and how the plans are utilised by participant characteristics such as age and SIL (Supported Independent Living) arrangement status.
  • Participant goals, outcomes and satisfaction –this section starts with participant goal-setting rates by outcomes domain, followed by baseline and longitudinal outcome measures for participants and family/carers including whether they think the NDIS has helped them improve outcomes. In addition, results from the Participant Satisfaction Survey (PSS) are also presented. 

Note: the information on these pages is subject to a Data disclaimer.

This page current as of
1 July 2021